Muscle Biopsy Results

I tried to get on yesterday to update but the site was having issues.

Are you ready for this????? The results are in and ALL tests came in within NORMAL RANGE! For those of you who don't know the muscle biopsy was testing for mitochondrial diseases. The mitochondria are the "power houses" of our cells. ANYWAYS I want to share with you my first reaction.

Dr. Raff- "blah blah blah blah all tests came back normal blah blah blah"

Me- "THIS IS SO COOL!"

Dr. Raff- "it is?'

Me- "YES! This is just another testiment to God's power, it proves yet again that man nor moderne medicine does not know everything. God made us, he made us so intricate that only HE knows us completely!"

The Dr was very sweet and answered any questions I had. I really like him, anytime we see him he is very genuine and takes his time with us.

I know that my reaction seems odd. Shouldn't my first reaction be frustration? After all Jackie is 27 months old, we started testing at children's when she was 9 months old. That is 18 months of testing and waiting. Believe me when I say I have been frustrated, angry, scared but everytime I fall into those feelings God has been there to pull me out of it. I continue to learn through this whole process that GOD is HUGE.

My Grandma Clara and I where talking about this and she spoke of how she prays for healing for Jackie all the time. As I know many others do. She went on to say that maybe Jackie did have something devistating and she is being healed now. After all she is making improvements and is doing new things all the time:)

I learned yesterday that my Dad doesn't want Jackie to be diagnosed, he feels like it would label her and she wouldn't be just Jackie anymore. She would be seen as said illness and Jackie. I see his point and I can agree with it. As a matter of fact my husband felt the same way and maybe still does to some extent. My thought was that I wanted to do every test possible that would not harm her if it would help us help her.

To spin off of my Dads thoughts, Jackie is a miracle. At the age of 9 months her body behaved like a wet noodle. NO consistant muscle tone and now at just over two years of age she rolls over, holds her head up and is sitting really well with minimal support, she is finding ways to communicate with us, eats much better, no reflux, she is gaining weight, shows interest in toys and has a smile and laugh that is indiscribable. When I see her smile, this teeth showing full face smile I am humbled. Humbled that this little girl is SO happy despite her limitations. She is fast becoming my hero. My sweet little girl has the determination of David (David and Goliath) the strength of Moses, and the power of Jesus running through her veins.

Our God is an AWESOME GOD HE REIGNS from heaven above with WISOM, POWER AND GRACE.
OUR GOD IS AN AWESOME GOD.

Thank you all for your continued prayers for our family. God IS moving.