Just a quick post, yesterday I called the genetics clinic at Children's to inquire about Jackie's Muscle biopsy. We had the procedure done on April 20th 2009 and have been waiting patiently ( :) ) to hear the results. And YES we were warned that it was going to take several weeks. Anyway I got a voicemail back from one of the assistants saying ALL the results are in and she has left a voicemail for Dr.Raff to give us a call. She said she is not trained to interpert the results so he has to call us. The Dr is supposed to call us today. PLEASE pray that he will call today and that it won't require an appt to come see him. No offense but I can't schedule anymore time out right now.
Thank you all for your love and support
Danielle
Wow Danielle, I'd be going crazy with the waiting!! I really hope the tests give some conclusive results for you and that they are able tell you over the phone! Good for you for continuing to follow up with them and to get your answers.
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